tag:blogger.com,1999:blog-9165296348512373623.comments2023-09-05T05:46:20.870-07:00Your Brain After ChemoAnonymoushttp://www.blogger.com/profile/15666484433730489156noreply@blogger.comBlogger242125tag:blogger.com,1999:blog-9165296348512373623.post-48489509070277728272018-02-04T17:49:26.333-08:002018-02-04T17:49:26.333-08:00Wow, it's cool to come upon your blog. I'...Wow, it's cool to come upon your blog. I'm a writer and literature professor who had stage II Hodgkins disease and four months of ABVD. I'm five years clear of cancer, but still lose names. I mostly just blow it off and tell my students I'll remember soon, or ask them to find the name (critical thinking!) but it's frustrating. Stranger, though, is that I wrote a lot of poetry before chemo and recently I've completed my first novel. I think there's clearly a shift there. Dysnomia is worse when I'm tired but it concerns me anyway.Anonymoushttps://www.blogger.com/profile/14406604852427339920noreply@blogger.comtag:blogger.com,1999:blog-9165296348512373623.post-51825150826827853192018-01-12T06:10:21.859-08:002018-01-12T06:10:21.859-08:00Thank you for your blog. I am about11 months from ...Thank you for your blog. I am about11 months from last chemo for stage4 endometrial cancer. I am 38 and feel like a crazy person. My mood swings are horrible. I get enraged so easily over everything. The chemo brain makes feel so incompetent. Lots of people have told me about depression afterwards and worrying about recurrence but that's not my issue this is the first time I have known others have the anger and confusion. Thanks you for letting me know I'm not insaneAnonymoushttps://www.blogger.com/profile/02280156113657754016noreply@blogger.comtag:blogger.com,1999:blog-9165296348512373623.post-32063192566424706842017-12-23T11:06:22.987-08:002017-12-23T11:06:22.987-08:00i agree with everything you said, and cant work be...i agree with everything you said, and cant work because of the affects but i know of no physician that will say, it was the chemo damage, only my arthritis specialist has agreed with me. its depressing when docs just look at you and will not blame this drug for the permante changes in you. also though i dont think they couldnt because then how would they treat the cancer? we would just die without the treatment that has left us disabled and suffer its better to be alive i can see my grandaught grow up. i was 50 when i found my tumer and i had mamo grams 2 years befor and even four years befor and my surgon told be i had it from 6 to ten years befor i found the tumer, my doctors never found it.Anonymoushttps://www.blogger.com/profile/16008261564184285448noreply@blogger.comtag:blogger.com,1999:blog-9165296348512373623.post-25496425324362105092017-12-23T10:59:00.227-08:002017-12-23T10:59:00.227-08:00i totally understand, im the same way it is the ne...i totally understand, im the same way it is the new norm for me, but after 12 years i no now it is the norm for me but still cant accept it its to depressing to be so disabled now.Anonymoushttps://www.blogger.com/profile/16008261564184285448noreply@blogger.comtag:blogger.com,1999:blog-9165296348512373623.post-5345842744723817262017-12-23T10:55:01.768-08:002017-12-23T10:55:01.768-08:00i went through chemo in 2005 trial study of 4 roun...i went through chemo in 2005 trial study of 4 round of strong chemo drugs and i still have memory and anger problems. im glad im still alive but life was never the same and none of my doctors help or give me answers of the things i still suffer from. physical and mental, i hate the anger problem i feel like a volcano erupting and no matter how bad i feel behaiving that way i cant control it. i think doctors will not help because they dont want to get involved in agreeing that is the cause of the problem for finacial reasons. my whole body is still weak as soon as i went back to work 1 month after chemo and went to have radiation treatments after work, i didnt have the strength to climb stairs so i stopped going to the bathroom at work, bathrooms down a flight of stairs, my toenails fell off, i had blisters all over the bottom of my feet, when driving to the clinic or home i would forget where i was and get lost. could not follow the recipies expect of me at work, i was a baker, buy the way my treatment was for breast cancer stage 3 on right breast and im right handed, and my right hand just out of the blue would realeas and i would drop whatever was in my hand , and still do, the driving thing is better but my brain is awful anyone tells me anything and i forget it that day it scares me my daughter tells me i didnt have the horrible anger problem befor chemo and sister and daughter tell me my memory is worse, i know it is but to what extent i cant tell, myself. so i have no answers only questions, and i uderstand how awful it makes your husband feel, and how depressing it is. my arm and armpit hurt all the time even my wrist and hand while im typing this. goodluckAnonymoushttps://www.blogger.com/profile/16008261564184285448noreply@blogger.comtag:blogger.com,1999:blog-9165296348512373623.post-71635426662369350022017-12-14T20:13:17.831-08:002017-12-14T20:13:17.831-08:00Same issues as all above say , some peripheral too...Same issues as all above say , some peripheral too , if someone blinds sides me and argues or challenges me , my words come out wrong , the more they attack , the worse i feel , and it is not till i have had good time to think , i can find the words i want, i have found family members controlling me this way , as they see the weakness , it has made me pull back , and keep out of their way . Even if i try to explain better later , it just starts them off again , best say nothing about anything , they lose their power over one then , not nice way to live really , it's a type of bullying. lorraine Snoreply@blogger.comtag:blogger.com,1999:blog-9165296348512373623.post-74399263883677732032017-11-08T08:06:51.741-08:002017-11-08T08:06:51.741-08:00I do not know if you would be interested in my cas...I do not know if you would be interested in my case.Here is Dr Itua Contact Information,drituaherbalcenter@gmail.com Or mobile +2348149277967 He talk on Whatsapp too.<br />I was treated for Hepatitis C genotype 2 commencing on january 14, 2017 I was treated with Dr Itua Herbal Medicine which he prepared and send to me Via OLUBI Courier service and I received it @ Ohio Post Office .I drink in two weeks as he instructed me to and I was cured.Just in two weeks,Isn’t that joyful.yes i’m happy and my heart fill with joy.<br />I was diagnosed with Non-Hodgkin�s lymphoma B cell in October, 2014.<br />Hepatitis C 2b positive, Viral Load 15.32 million, 3 Month Remission from Lg B cell Non-Hodgkin�s Lymphoma.<br />I carry a high risk of Lymphoma relapse due to constant exposure to the hepatitis C virus.<br />In order for me to have the maximum chance of a cure from my Non-Hodgkin�s Lymphoma the Hepatitis C must be treated in a timely manner or my life hangs in jeopardy. Dr Itua made my life meaningful again.And to my friend Nicky who directed me to Dr itua herbal center i forever debted to you my dear friend.Doctor Itua Assured me he can as well cured the following desease,HIV,DIABETES,HERPES VIRUS,HEPATITIS,Tasha Moorehttps://www.blogger.com/profile/02389426694153716491noreply@blogger.comtag:blogger.com,1999:blog-9165296348512373623.post-73861791152935917582017-09-26T08:59:17.404-07:002017-09-26T08:59:17.404-07:00UPDATE since my last post 3 years ago about my hus...UPDATE since my last post 3 years ago about my husband who went through Lymphoma and Acute Leukemia. His chemically-altered mind worsened. He is much more angry and aggressive. He left me. Found an attorney to file for divorce. The aftermath of the chemo has ruined our entire family. Cami Mayerhttps://www.blogger.com/profile/00247442540438820528noreply@blogger.comtag:blogger.com,1999:blog-9165296348512373623.post-20039886828461249922017-09-20T08:39:24.908-07:002017-09-20T08:39:24.908-07:00I had ACT chemo ten years ago, dose-dense. I have...I had ACT chemo ten years ago, dose-dense. I have had so many problems since. I have a dx of "chemo brain" and PTSD. I was doing well before chemo, had a master's degree, goals, a job. Now I can't work and I struggle with sleep and keeping myself stable. Meds have rough side effects. I think chemo did this do me. I can't help it, this is the dividing line for me. I was fine before letting it into my body, and I am not the same since. We need someone to do the studies and support what survivors are saying, and we need settlements, bc I have lost a lot of year so of work and my financial future is slammed now. Disabilty is minimal to live on. This is not my fault. Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-9165296348512373623.post-8226284816539891782017-04-09T04:26:01.137-07:002017-04-09T04:26:01.137-07:00Wow....I thought I was the only one..
I haven'...Wow....I thought I was the only one..<br />I haven't ever talked to anyone about the things I'm going through and the change in me...I keep waiting to get back to normal, but maybe this is normal...sigh...I'm depressed, don't enjoy anything, can sleep all day...have no energy or want....I'm a total different person....and it bugs the hell out of me!Janetnoreply@blogger.comtag:blogger.com,1999:blog-9165296348512373623.post-88469643066089200132016-06-21T18:18:20.170-07:002016-06-21T18:18:20.170-07:00Does anyone have any experience dealing with Chemo...Does anyone have any experience dealing with Chemo brain symptoms in the workplace? My employer had discriminated against me for the last 4 to 5 years. With extensive self treatment and taking college courses to help me get back to "normal" it has been a struggle. My employer has not been understanding at all. They have even violated my FMLA rights by indicating in an evaluation the impact my medical leave was the cause of my project failure. I have gone so far in reporting them to the EEOC and have received a Right to Sue letter. Does anyone have any recommendations to a really good attorney in Southern California?Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-9165296348512373623.post-65162085810638464962015-02-17T12:40:26.430-08:002015-02-17T12:40:26.430-08:00Saw this, got the publication to read it! Very Awe...Saw this, got the publication to read it! Very Awesome Info!AnneMariehttps://www.blogger.com/profile/17728571907921895836noreply@blogger.comtag:blogger.com,1999:blog-9165296348512373623.post-30464418097564834922014-12-03T18:50:48.107-08:002014-12-03T18:50:48.107-08:00Alana, Is there anyone you can speak with about th...Alana, Is there anyone you can speak with about this? If you were spiritual in the past, what might help, at least in terms of mood, would be to think about those things you are grateful for. That can help combat depression. Think about your kids and anyone else in your life who might bring you joy. Think about those who love you and need you. Have compassion for yourself. You've been through so much. Good luck.Anonymoushttps://www.blogger.com/profile/15666484433730489156noreply@blogger.comtag:blogger.com,1999:blog-9165296348512373623.post-2799538630201212632014-12-03T08:14:25.437-08:002014-12-03T08:14:25.437-08:00Oh brother! I just realized this blog has a book ...Oh brother! I just realized this blog has a book about this very topic. So thankful!!Cami Mayerhttps://www.blogger.com/profile/00247442540438820528noreply@blogger.comtag:blogger.com,1999:blog-9165296348512373623.post-74355040153803262042014-12-03T06:52:07.197-08:002014-12-03T06:52:07.197-08:00Oh Alana....this is exactly what my husband is goi...Oh Alana....this is exactly what my husband is going through. I wish I could understand. I wish there was a book written about it. He has pushed me out of his life. He just wants to be alone, except for time with our adult children. I sure need a lot of advice! Thank you for your insight Alana. It has truly helped.Cami Mayerhttps://www.blogger.com/profile/00247442540438820528noreply@blogger.comtag:blogger.com,1999:blog-9165296348512373623.post-65755382347622575622014-12-02T16:14:19.754-08:002014-12-02T16:14:19.754-08:00I'm a seven year breast cancer surviver. I too...I'm a seven year breast cancer surviver. I too have deal with what I call a complete change in personality. Before a very spiritual person, friendly and outgoing. Now spiritually dead and don't prefer to be around anyone but my kids. I'm on hormone replacement and thyroid meds. Don't like anti-depressants. Just keep praying God will help.Anonymoushttps://www.blogger.com/profile/07010768068379645675noreply@blogger.comtag:blogger.com,1999:blog-9165296348512373623.post-14895956337477969282014-11-23T19:48:22.709-08:002014-11-23T19:48:22.709-08:00I, too, underwent treatment for Hep C with the add...I, too, underwent treatment for Hep C with the addition of Incivik, a drug since taken off the market for its deadly side effects. I had to take the peginterferon for 41 weeks, but I became so debilitated that I was hospitalized and taken off of it. All of that was 3 years ago, yet I have all the symptoms except depression. Before the treatment, I would have 3 or 4 books going at the same time (I was a school librarian.) Now, I can read only on good days. I, too, have limited physical endurance....sometimes, I have to take a nap after a shower because it is so exhausting. It is hard to explain to family and friends because my g.i. doc said I should feel fine because all the drugs are long since out of my body. Thank you for writing this blog. It affirms what I have suspected all along. Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-9165296348512373623.post-2933988877348086662014-11-11T13:14:00.355-08:002014-11-11T13:14:00.355-08:00How fantastic that you could directly contact the ...How fantastic that you could directly contact the researcher for a quote. I love the internet ;) ~CatherineFacing Cancerhttp://www.facingcancer.canoreply@blogger.comtag:blogger.com,1999:blog-9165296348512373623.post-62293685860861625282014-11-11T06:29:27.532-08:002014-11-11T06:29:27.532-08:00Thanks Idelle. Really interesting update, especial...Thanks Idelle. Really interesting update, especially as I had large doses of doxorubicin! I wonder if there might be healthier way to open up the pathways once they understand the mechanisms further. Fingers crossed XAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-9165296348512373623.post-45659841332226940042014-11-07T10:20:47.340-08:002014-11-07T10:20:47.340-08:00I am having the same experience from the treatment...I am having the same experience from the treatment for the Hep C. It's devastating. I was never told about this. I was a high functioning oncology nurse and now I have no short term memory, severe depression, can't make decisions, can't think through thoughts. It's getting worse everyday. I feel as if I'm falling down a very dark rabbit hole..<br />Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-9165296348512373623.post-34554550539165415272014-09-19T17:33:41.205-07:002014-09-19T17:33:41.205-07:00This blog is all about helping each other understa...This blog is all about helping each other understand the symptoms of chemo brain. Many of those symptoms are extreme. But if you mean you'd like to interact with people who have gone through your husband's specific symptoms of anger and rage, perhaps others will write in. You might also read over the comments in this section and you'll see similar frustrations and stories. Best wishes.Anonymoushttps://www.blogger.com/profile/15666484433730489156noreply@blogger.comtag:blogger.com,1999:blog-9165296348512373623.post-51384212652180290782014-09-19T16:14:24.611-07:002014-09-19T16:14:24.611-07:00He refuses to see a neuropsychologist. But your l...He refuses to see a neuropsychologist. But your last sentence encouraged me and gave me hope. Thank you so much. I know there are cases of these extreme responses to chemo. I have heard of them. I wish there was a forum where we could discuss them first-hand. I would like to interact with people who have gone through it. Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-9165296348512373623.post-68401543143041633952014-09-18T22:32:47.515-07:002014-09-18T22:32:47.515-07:00People react differently to the after effects of c...People react differently to the after effects of chemo. Have you talked with your husband's doctor about this personality change? You might want to ask for a referral to a neuropsychologist to help your husband get to the emotional and/or biolgical cause of his darkness of spirit. You've asked if this will resolve with time. That's also something to ask a neuropsychologist who would be in the best position to make an assessment. In terms of general statistics, the research shows that about 3/4 of people with chemo brain symptoms feel fairly back to normal within two years after treatment.Anonymoushttps://www.blogger.com/profile/15666484433730489156noreply@blogger.comtag:blogger.com,1999:blog-9165296348512373623.post-15541545442259082022014-09-18T17:39:48.045-07:002014-09-18T17:39:48.045-07:00My husband was diagnosed with Hodgkin's Lympho...My husband was diagnosed with Hodgkin's Lymphoma 4 years ago. He underwent aggressive chemotherapy and radiation for a year. Immediately thereafter he went into Acute Leukemia, followed by 10-times worse chemo and a bone marrow transplant. He emerged a different person - full of darkness and rage and hate. It is not just depression or anger about cancer. It is a complete personality change. It is the exact opposite of what he used to be. I have asked everyone and looked all over the internet, but I can't find the answer to my question: will this resolve with time? It has already been over a year since his treatment ended. I pray someone has the answer. Thank you so much!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-9165296348512373623.post-31518381769420934762014-09-09T15:57:41.183-07:002014-09-09T15:57:41.183-07:00I had 4 rounds of two types chemo & 4 rounds o...I had 4 rounds of two types chemo & 4 rounds of one type chemo followed by 33 radiation treatments. Three months after I was diagnosed with Hashimotos thyroiditis which is now under control. Most of the severe symptoms from breast cancer treatment have subsided but I am still left with joint pain, stiffness, fatigue & CHEMO BRAIN! My incredible oncologist has assured me this will all get better, but I have been starting to wonder if I had the beginnings of dementia. She has referred me to neurology (mainly because my long term insurance says I'm no longer disabled), but also to reassure me. Reading thru this info has reassured me my Oncologist is right on top of things as she has been all along and I am getting the best care possible. Thank you!!!Anonymousnoreply@blogger.com