My questions are from the perspective of the well spouse or family member: Any tips for caregivers/spouse/family in terms of coping with/confronting/discussing this chemo brain issue with our loved one? Also, are there safety issues for parenting while experiencing fog?
My husband is a Hodgkins survivor of almost three years. Chemo brain is a reality at our house. It is a challenge to be on the receiving end of the fog but it also isn't fair to blame the patient/survivor either. It would be like blaming someone with dementia for their confusion. At the same time, it is tough to be loving and patient while repeating the answer to a question 15 times and still not have him remember that we have discussed it. I also swear my husband is on a loop...he just repeats himself constantly. We try to keep it lighthearted and I joke that if he hears himself say "Like I said...," then he should just stop but there is a point at which it is no longer funny.
I have to say that, at some point, I began to wonder if it was contagious. I began to think I was losing my mind too. I'm sure spouses/caregivers/family experience a level of fatigue and stress that begin to impact our own memory, which begs the question, Where does fatigue fit into all of this for cancer patients?
Thanks so much for bringing attention to this important situation! And thank you in advance for any thoughts in response to these questions.